ABSTRACT
Background/Purpose: Adolescent and young adult (AYA) cancer survivors experience acute and long-term challenges, including disruptions to developmental milestones, altered relationships, and difficulty managing follow-up care. The COVID-19 pandemic likely exacerbated these challenges, but, to date, we know little about young survivors' day-to-day lives during this time. Here, we qualitatively assessed AYA cancer survivors' pandemic-related experiences. Method(s): Thirty-five AYA cancer survivors (85% female, Mage = 32.7 years, 71% White, September 2020-March 2021) wrote factual details about their day-to-day lives (e.g., "what is a typical day like?") as part of a larger randomized controlled trial. Participants were, on average, 5.9 years post-diagnosis;the majority were diagnosed with lymphoma (25.7%) or thyroid cancer (17.1%). Data were analyzed using constant comparative method. Result(s): Five themes emerged: (1) job changes (e.g., inability to work due to immunosuppression, fear career would become less viable);(2) limited interactions/relational depth (e.g., feeling "left out" due to immunosuppression, inability to date, risky family behaviors limit meaningful connection);(3) varying reactions to virtual communication (e.g., gratitude for online schooling, exercise, and social media, withdrawing from friendships due to "zoom burn out," not attending therapy due to lack of engagement);(4) difficulty engaging in health-promoting behaviors and attending/interacting in medical appointments (e.g., problems maintaining nutrition and exercise routines, postponing surveillance appointments, missing family member presence in medical appointments), and (5) disruptions/ delays to post-treatment milestones/plans (e.g., delaying vocational changes, wedding and family planning, and celebratory travel). Notably, no themes associated with positive adjustment emerged. Conclusions and Implications: Goals within multiple domains were obstructed and unmet needs were identified, namely, assistance navigating isolation, relationship disruptions, career/financial barriers, and access to medical care. Results are limited due to the methodology, as this was not a structured interview. Nonetheless, individual counsel with AYA cancer survivors is recommended to provide resources and address pandemic-induced barriers to health and well-being.